Heartkids are good but they charge you to get newsletter and other stuff and I would just like to have an online group that you can chat to when to whole thing of dealing with a child with a heart condition gets a little heavy to deal with. My son who as the CHD is now 8 and is due to go in for his 2nd operation and we don't have alot of support outside of ourselves (my husband and myself and his mum and step-dad) we also have other children that we have to help get through this as well as help our son understand everything that will happen to him without frecking him out and scareing him.
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